Yesterday, I received a call from Dr. Forbes, Mary Clare’s cardiologist at MUSC. Her catherization has been scheduled for October 30, which is next Tuesday, one week away. I knew it was coming, but it just seems so soon. Apparently, he is pretty certain that her aorta will need to be “ballooned” and the sooner, the better. We will also have a better idea of how her heart is doing and will be able to schedule the 2nd surgery, the Glenn.<\/p>\n
I know that the catherization is necessary and I know that it is really nothing compared to what she has already been through, and unfortunately, still to come. Still, it is all the more difficult as we have had such a wonderfully smooth “almost” 3 months home with her. She will be 4-months-old on October 27.<\/p>\n
We will have to be at the hospital at 7 a.m. on Tuesday morning and must be prepared to stay overnight. She can’t have anything to eat after midnight. I’m not sure how I’m going to do that. She has done well on her feeding schedule, but still wakes at least once to eat, which is why I’m up writing at this crazy hour. (And she has quite a temper when she isn’t fed ASAP!) I was hoping to have a few more weeks to work on that. Nothing like a crash course!<\/p>\n
She will go under general anesthesia for the procedure, which Dr. Bandisode at MUSC will be performing. As always, we’ll be right there in the PC-ICU waiting room with access to a computer, so we’ll be keeping the blog updated with results. (it does wonders when trying to keep busy)<\/p>\n
I signed up to help with McCanless’ Halloween party at her preschool on Oct 30, the same day as Mary Clare’s catherization. That’s hard too. I know in comparison, it seems silly to worry about missing a school party vs. being at your baby girl’s heart catherization. But, when you realize how important these parties are in the mind of a three-year-old and how she has been so excited about it, it breaks my heart. The thought of having to leave her again, even for a couple of days, just kills me. She understands that Mary Clare is a little sick and her heart is “broken,” but she doesn’t understand why that takes us away from her. I know one day she will understand, but right now I know it is hard for her.<\/p>\n
OKAY, on to good news…we’ll be one more heart procedure down by Halloween and closer to a healthier Mary Clare! We’ll quite possibly have her second surgery well before Christmas and will be home post- Glenn ready and waiting for Santa!! What a year it will have been, and what better way to celebrate Christmas? We are truly blessed and so thankful for such a wonderful year!<\/p>\n","protected":false},"excerpt":{"rendered":"
Yesterday, I received a call from Dr. Forbes, Mary Clare’s cardiologist at MUSC. Her catherization has been scheduled for October 30, which is next Tuesday, one week away. I knew it was coming, but it just seems so soon. Apparently, he is pretty certain that her aorta will need to be “ballooned” and the sooner, […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-436","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/436","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=436"}],"version-history":[{"count":0,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/436\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=436"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=436"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=436"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}