I just realized I never posted an update on our most recent MUSC venture… \u00a0We packed up and headed to our beloved Charleston once again last week for a visit with Mary Clare’s neurologist Dr. Turner. \u00a0We adore him. \u00a0MC adores him. \u00a0If we have to have a neurologist, he is certainly our man. Very Steve Carell-ish. \u00a0In fact, he has a photo of Steve Carell on his iphone and a little iphone trick in which Steve Carell seemingly calls him.<\/p>\n
Nothing new. MC has seizures. \u00a0She will most likely have another. \u00a0Her little brain is just made that way. \u00a0The lesion on her right frontal lobe may be the culprit but it will never be certain. \u00a0 Her seizures have nothing to do with her heart and vice versa. \u00a0Not only does she have HLHS, she has HLHS and<\/em> seizures, which Dr. Turner says he, “never sees.” \u00a0Such a unique little girl we have!<\/p>\n We have decided to wait on giving her daily oral meds. \u00a0If\/when she has another seizure, Dr. Turner strongly urged us to begin meds. \u00a0We just feel like she will have so much going on in a couple of weeks, we didn’t want to mix in another medication and potential side effects. \u00a0So far, so good. \u00a0No seizures. \u00a0I even allowed her to go to the beach for the night with my mom. \u00a0(I nearly had a panic attack at one point as they were traveling down and I lost contact-thanks to my mother’s uncanny ability at keeping her phone dead at most times.)<\/p>\n Mom took the girls to the beach. \u00a0They danced in the Atalaya Castle in Murrells Inlet and watched princess movies. \u00a0No seizures for her. \u00a0Only one panic attack for me. \u00a0Life is good.<\/p>\n","protected":false},"excerpt":{"rendered":" I just realized I never posted an update on our most recent MUSC venture… \u00a0We packed up and headed to our beloved Charleston once again last week for a visit with Mary Clare’s neurologist Dr. Turner. \u00a0We adore him. \u00a0MC adores him. \u00a0If we have to have a neurologist, he is certainly our man. Very […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-5277","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/5277","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=5277"}],"version-history":[{"count":2,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/5277\/revisions"}],"predecessor-version":[{"id":5279,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/5277\/revisions\/5279"}],"wp:attachment":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=5277"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=5277"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=5277"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}