{"id":5505,"date":"2011-04-03T19:11:15","date_gmt":"2011-04-04T00:11:15","guid":{"rendered":"http:\/\/www.babypennington.com\/?p=5505"},"modified":"2011-04-03T21:32:43","modified_gmt":"2011-04-04T02:32:43","slug":"fontan-day-7","status":"publish","type":"post","link":"https:\/\/www.babypennington.com\/?p=5505","title":{"rendered":"Fontan Day 7"},"content":{"rendered":"

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7:30 PM<\/strong> Another day down.<\/p>\n

Mary Clare had a very tough day yesterday. \u00a0She refused to take her oral pain meds, and wasn’t on IV pain medication. \u00a0She hasn’t complained at all of her chest, as I assumed. She has been having severe back pain. \u00a0We’ve ruled out several ideas, but have really not determined the exact reason. \u00a0We spoke to a surgeon on her team and he seemed to think it had to do with “entry of the chest cavity.” \u00a0Basically, how her little rib cage was ripped apart and bruised. \u00a0So she has been given Toradol, which should help if it’s muscle pain. Last night, she threw up every time her nurse tried to give her meds, so we’ve started her on meds for nausea. \u00a0Today has been better and it’s not as much of a struggle to get them down. \u00a0(She’s a stubborned little one!) \u00a0 She has also learned that if she says she doesn’t hurt (even when she does), the nurses and doctors don’t touch her and she doesn’t have to take medicine, but we are getting there. \u00a0One baby step at a time.<\/p>\n

Today, she has been awake more and has been happier. \u00a0We tried to play in the Atrium, the children’s play center. \u00a0We unplugged her, piled her into her transport wagon and wheeled her down stuffed with blankets, pillows and all of her necessary gear. \u00a0She was so excited but just couldn’t muster up enough energy to do much of anything. \u00a0She wanted to play so badly, but it was simply too painful to maneuver her little body. \u00a0We painted and walked around and stared up at the colorful kites and basked in the sunlight of the Atrium windows. \u00a0After about 20 minutes, she was frustrated and in tears, so we headed back up. \u00a0She wanted to sit quietly in her wagon for a while once we were back in our room. \u00a0The quiet, and stillness seemed to calm her. \u00a0It saddens me when I see her sitting quietly like that, just staring at the wall or into space. \u00a0She seems to know that her body needs time to heal. \u00a0She understands all of this somehow.<\/p>\n

She also ate for the first time tonight. \u00a0Cheese pizza! \u00a0She just hasn’t had an appetite at all. \u00a0Not even the bag full of pink candy from Uncle Robert enticed her. \u00a0As I type this, she is watching Tangled for the second time today and I’m hoping and praying that she will go to the potty. \u00a0If not, at 8PM, they have to catheterize her. \u00a0Although we seem to be having a few bumps in the road, she has amazed me with her determination and stamina. \u00a0She is such an amazing little girl.<\/p>\n

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10:00 PM <\/strong>So, Mary Clare and Mel are in bed watching Tangled for the third time today and guess what? \u00a0MC went to the potty. \u00a0(She decided to go just as the nurse was walking down the hall with her catheterization “tools” ready to get started. \u00a0Nurse Kyra smiled when she heard the news and gladly returned them. We all cheered and “high fived” Ariel. Definitely a great ending to our day! \u00a0Mary Clare has also been taking her oral meds like a champ. \u00a0(Well not quite like a champ, but we’re getting them-and keeping them-down-so that means she’s a champ in our book.) Goals for \u00a0MC tomorrow: \u00a0taking another trip to the Atrium (actually nurses orders-the movement helps keep the fluid moving), talking all oral meds, going to the potty and eating a little more. \u00a0Baby steps. \u00a0I’ll probably need help remembering baby steps when we try to get our three-year-old back to “normal” when we get home. \u00a0I have a feeling it may take baby steps to reverse the effects of all of this attention “Ariel” is receiving, but she deserves every single bit of it!<\/p>\n

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7:30 PM Another day down. Mary Clare had a very tough day yesterday. \u00a0She refused to take her oral pain meds, and wasn’t on IV pain medication. \u00a0She hasn’t complained at all of her chest, as I assumed. She has been having severe back pain. \u00a0We’ve ruled out several ideas, but have really not determined […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-5505","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/5505","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=5505"}],"version-history":[{"count":6,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/5505\/revisions"}],"predecessor-version":[{"id":5518,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/5505\/revisions\/5518"}],"wp:attachment":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=5505"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=5505"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=5505"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}