{"id":5540,"date":"2011-04-06T05:22:48","date_gmt":"2011-04-06T10:22:48","guid":{"rendered":"http:\/\/www.babypennington.com\/?p=5540"},"modified":"2011-04-06T09:59:56","modified_gmt":"2011-04-06T14:59:56","slug":"happy-1-week-fonanniversary-mc","status":"publish","type":"post","link":"https:\/\/www.babypennington.com\/?p=5540","title":{"rendered":"Happy 1 week Fonanniversary, MC!"},"content":{"rendered":"

6:00 AM<\/strong> One week ago today at this moment, I was handing over MC to her team of docs.\u00a0 It’s amazing how far she has come and what she can do one week post op.\u00a0 We had a fun afternoon yesterday with a visits from Aunt Kacy and a few friends.\u00a0 Yesterday was the first day MC has been around another child and I think it was great for her. \u00a0 I’m anxious to get McCanless here to visit her baby sister.\u00a0 I know they will both love to see each other.<\/p>\n

MC started off her day pretty slowly.\u00a0 She was in no mood to talk to her cardiology team or Dr. Bradley, her surgeon.\u00a0 She slept in and lounged around most of the morning and didn’t even want to head to the Atrium for a morning visit like we usually do.\u00a0 We took a walk around the hospital and watched Nemo for a bit.\u00a0 After lunch, I made her get up and we went to the Atrium.\u00a0 She painted and played for a while once we were there.\u00a0 Later on, her nurse changed the bandages on her chest, which was not fun, but she had a\u00a0 great afternoon playing with Parker, my friend, Lee’s 7-year-0ld.\u00a0 They laughed and giggled and he even painted her toenails.\u00a0 It was amazing to see how happy she was just being around another child.<\/p>\n

Her nurse came in this morning and checked her 24 hour fluid output from her chest tubes.\u00a0 Her output is still somewhat high.\u00a0 Her left tube output was 115 mls and her right tube output was 150 mls.\u00a0 We’ll get there.<\/p>\n

She continues to be a bear with taking her oral meds.\u00a0 She’s just sick of them.\u00a0 I can’t blame her, though.\u00a0 She still doesn’t have much of an appetite, although she did chow down on a handful of Coco Puffs yesterday.\u00a0 I’m hoping today she will want to eat more, get her meds down (and keep them down) and have enough energy to make it to the playroom.\u00a0 Yesterday, a new neighbor arrived, a HLHS baby girl.\u00a0 It was great talking to her family and being able to show them how great MC is doing.\u00a0 As I talked to her mom about feeds, tummy issues and sleeping habits, the memories of her very first surgery came flooding back.\u00a0 It seemed like an eternity away until I really started talking about it.\u00a0 It still amazes me how much my baby girl has been through.\u00a0 No wonder she’s so sassy!<\/p>\n

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Parker painting MC’s toenails yesterday!<\/p>\n

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7:33 AM<\/strong> The Princess is still sleeping soundly and I’ve enjoyed watching the sun rise on the Atrium.\u00a0 It’s truly a lovely view, especially for my sweet girl who lives to visit the magical playroom everyday.\u00a0 I snapped a few photos and thought I’d share.\u00a0 On 8D, parents are required to stay with the children as primary care givers.\u00a0 (Not that I would be anywhere else anyway.)\u00a0 We do have a fold out chair that acts as a twin bed at night; however, I opt to sleep right in the bed with Mary Clare.\u00a0 She loves to “get in her spot” smushed right beside me.<\/p>\n

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Do you see sleeping beauty all bundled up?<\/p>\n

10:30 AM <\/strong>Mary Clare just downed 5 meds so I’m letting her take a break with a bit of “Max and Ruby” on Nick.\u00a0 (I’m also giving myself a mental break after that ordeal.) Otherwise, she’s had a slow start today.\u00a0 Our plan was to hit the Atrium at 10, when it first opens, but the docs have not rounded yet, so we’re waiting on them.\u00a0 It’s amazing how full our days actually are.\u00a0 We are never just sitting around.\u00a0 We have appointments, and meetings with various docs, nurses schedule various events (dressing changes\/IV meds\/ check-ins) and we always have Mary Clare “events.”\u00a0 I should have known that Mary Clare would wait to be plugged into an IV pole, with two chest tubes and collection chambers, and wireless telemetry leads to refuse to go potty in a pull up.\u00a0 I’ve waited two years to really try to potty train her because I just knew it would be an ordeal to be in panties while in the hospital. Or in the least, I thought she would revert BACK to pull-ups-so I waited.\u00a0 This week, though she is as potty trained as it gets, even through the night.\u00a0 Dry as a bone.\u00a0 My children are as hard headed and head strong as they come.\u00a0 Shall we take a moment to pray for my patience?<\/p>\n

Have I mentioned how blown away by all of the love and support we have received?\u00a0 I have been amazed at the number of people who love our baby girl and pray for her everyday. I just read an eNewsletter from Thomas Hart and saw that the student body has raised $1,351.00 so far for the American Heart Association in honor of MC. \u00a0They have been selling buttons with her photo and “Pinkalicious” on them, of course! \u00a0So amazing. \u00a0I also have hundreds of photos of MC fans wearing pink overfilling my inbox.\u00a0 We have seen photos of friends, students, co-workers, strangers, store owners, pets, people from the East coast to the West coast all donning their pink for MC. \u00a0We have photos of pink balloons, pink ribbons and pink decorations from everywhere on store fronts and houses! \u00a0My heart also overfills with happiness and gratitude. I can’t wait to show her the photos\u00a0 one day and\u00a0 tell her of the Day of Pink that was just for her! \u00a0 Pinkalicious<\/a> author, Victoria Kann, also contacted us and sent Mary Clare a Pinkalicious care package with Pinkalicious dolls and signed books.\u00a0 How amazing is that?\u00a0 We are blessed beyond measure.\u00a0 Thanks be to God!
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6:00 AM One week ago today at this moment, I was handing over MC to her team of docs.\u00a0 It’s amazing how far she has come and what she can do one week post op.\u00a0 We had a fun afternoon yesterday with a visits from Aunt Kacy and a few friends.\u00a0 Yesterday was the first […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-5540","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/5540","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=5540"}],"version-history":[{"count":15,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/5540\/revisions"}],"predecessor-version":[{"id":5561,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=\/wp\/v2\/posts\/5540\/revisions\/5561"}],"wp:attachment":[{"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=5540"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=5540"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.babypennington.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=5540"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}