Update from MUSC…

i know that it probably seems crazy that I am able to update this blog from my hospital bed just after delivering my baby, but it really is a source of comfort and just something to fill the space that I’m not with Mary Clare. We are allowed to see her most of the day, but I guess I’m just in “new mom” mode and I still wake every couple of hours as if she were in my room. I visited her this morning, just before morning shift change (one of the few times we are not allowed in the PCICU) She looks adorable! She had her first bath last nihgt and she has a tiny pink bow in her hair! The PCICU weighed her last night and we all discovered that she weighs 7 lbs, 2 oz, not 5 lbs 14 oz as we were originally told! (Not sure how that happened) I thought those cheeks were way too big for a 5 lb baby!!

Last night I had a terrifying moment with Mary Clare. I was visiting her, and she stopped breathing on her own. The simple fact that she was breathing on her own was a great feat for her in and of itself, they told us, but they knew that it wouldn’t last, or it usually doesn’t last too long with these babies. The same drug that they are giving her to keep her valves open, also slow everything else down.

She now has a breathing tube, which will remain until after her surgery. It was very scary, especially since I was right there with her when she turned blue, but today she looks comfortable, very pink, and the swelling from birth has gone down. (The chubby cheeks are still definitely there!)

She has a tiny friend in the PCICU near her. He is also a HLHS baby and is 8 months old, and in for his second surgery. Apparently he has his days and nights confused and was watching Barney from his huge flat screen tv rolled up beside his station. (This was 5 AM this morning!)

Not sure if I’ll get a chance to update much. I’m waiting on shift change right now, but I’m trying to spend as much time with Mary Clare as possible. Feel free to call us, we love to chat and brag about her! She is simply precious and I could just eat her up!!

We’ll find out about the “plan of action” today hopefully, but it still looks like surgery is still a few days away. Please continue to keep her in your prayers! She is a spunky little fighter already, and we know that she is so loved by many people!