Mary Clare 9 week update…

Mary Clare and I hit the road again yesterday for another check up at MUSC. She had an echo cardiogram, and a few new tests to check out her heart. All looks well and she was 9 lbs 13 oz, which is great. She is still below average for a “normal baby” but right on target for a “heart baby.” So we are truly thankful for that. She certainly looks healthy! Those cheeks are still so chubby!

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We also had a chance to visit with Emerson, her friend who also has HLHS. Emerson is up on 7C and doing well at this point. She and her family are on the road home! Once Emerson is consuming enough calories on her own she can go home!!! It was so funny how quickly I jumped right back into the swing of things up there. Emerson’s family had just moved up there from PCICU when Mary Clare and I arrived, so they were a bit unfamiliar with the routine. I felt as if I had never left. They will learn quickly how life is on 7C! Please continue to keep them in your prayers, as we certainly will.

Mary Clare’s percentiles(on a normal baby chart) at the time of her well-check up last week here in Hartsville:

Head Circumference: 14 1/2″ 10%
Length: 22.5″ 25%- 50%
Weight: 9 lbs 11oz 10-20%

The cardiologists tell me that she is doing well and not to worry that I should remember her (now one) ventricle is working for two, which burns twice the calories. (We all have two ventricles doing what her one does, which is why most “heart babies” are smaller….their little bodies burn much more calories)