Change of plans…

Dr. Bradley, Mary Clare’s surgeon, called Mel yesterday. Unfortunately, there is a child that needs emergency heart surgery this weekend and Mary Clare’s surgery has been postponed until Friday, December 7. (Pre-Op day will be on Thursday)

We were mentally prepared and ready to get this behind us, so the delay is a bit upsetting. However, this is a reminder to us that Mary Clare is progressing so well. We are thankful that her health is in such a state that allows her to be able to wait. I hope and pray that the other child recovers well from the surgery.

I also spoke to a new friend recently about her baby daughter, Kiara who also suffers from HLHS. Kiara will need to have a heart transplant because of difficulties after her Norwood. She was born in October and she and her mother spent Thanksgiving at MUSC. She will most likely remain at MUSC through the holidays and into the new year.

Baby Emerson is doing well and will have her heart catheterization in January with her second surgery probably in February. Emerson is so cute and sounds a bit like my McCanless as a baby, which makes for a tired mommy!

While HLHS is a rare Congenital Heart Disease, is has become a small world and I feel like I know many of the other HLHS mothers going through the same thing. It is a comfort to speak to them and know that we aren’t alone.

Well at least now my family will have Christmas presents! I have been doing a bit of shopping online, and McCanless is beginning to think that I have a thing for our UPS man because I run out to greet him everyday. ( to intercept boxes) I guess the good thing is that this gives us a few more days to enjoy the Christmas season at home and get a bit more shopping done! (Still looking for the Disney Enchanted Tales Deluxe Princess Castle!)

We’ll be in Charleston on Thursday and will update you from there!