A Sweet Clinic Visit!

Today, we headed back down to MUSC for a cardiology clinic visit for Mary Clare.   It was a relatively short visit, especially considering we were about 45 minutes late!   (Mel has a habit of being preoccupied with his phone calls as he drives and often takes slight detours.  Of course, I didn’t notice until we were about 20 minutes off course, either.)  We were seen immediately after our late arrival.  (I guess being the sole patients left to see and at lunchtime helped.)  We were able to visit with lots of our MUSC friends and really catch up, something we usually don’t have much time for when they have lots of other patients to see.  It was nice to have the time to really talk and catch up.

This was taken with my iPhone just before she assaulted the Lab Tech.  (wink)  Mary Clare is always so great with ECG’s, echos and her general clinic visits, but when she saw the phlebotomist, she knew exactly what was coming.  She began to cry and even told the tech to, “Go Away” as she hit pushed her.  A few determined shouts later, she stopped crying even before the needle was out.  What a champ.

After the usual check-up, and discussions with Dr. Forbus, MC’s cardiologist, we determined our best bet is to wait until Miss Priss gains weight.  Her numbers from her recent cath are excellent, her O2 sats were 85 today, and after blood work, it was determined her heart squeeze couldn’t be better!  Physically, her body is as good as it gets.  However, she only weighs 13.3 KG/28 lbs.  Ideally, Dr. Bradley, her cardiothoracic surgeon, would like her to be 15 KGs.  Dr. Forbus told us that he really wants her to gain the extra weight and Dr. Bradley generally doesn’t prefer to do the Fontan during prime flu/sick season, unless absolutely necessary.  So, we are probably are looking at surgery in the Spring.  Her blood work also ruled out a few other concerns we’ve had, and that was a relief.  (Dr. Forbus wanted to check for Juvenile Diabetes and deficiencies in her blood.)  All is great!  To celebrate, we headed to one of our favorite stops in Charleston, Market Street Sweets!  (Ironically)

It was a balmy 95 degrees and beautifully sunny downtown Charleston; but my girls are natural Fall lovers and are so ready for “Boot Season.”  (They are their own fasionistas in any season, however.)  Either way, they certainly love their boots!  What a great day!

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