I was just reminded, once again, how very precious life is.  A friend of mine, a fellow blogger, and adult CHDer passed away today.  I have linked to his blog, Adventures of a Funky Heart, on numerous occasions and over the past couple of years have really gotten to know Steve through emails.  He became a fan of Mary Clare’s and was a great source of comfort, support and knowledge for me.  Just four days ago, he passionately blogged a challenge to eradicate CHD by November 29, 2024, the 80th anniversary of the Blalock-Taussig Shunt.  He was an amazing writer and an amazing person.

Steve was born with Tricuspid Artresia, which is similar to HLHS.   He had the BT shunt when he was very young, and an early version of the Fontan, which left him with a single ventricle anatomy like Mary Clare.  Although he had a pacemaker and survived numerous health difficulties over his life he was considered an “oldie” complex CHD survivor at age 44.   His wit, his passion for CHD awareness and research and his courage will be terribly missed, especially by heart moms and dads who looked to him daily for inspiration and hope.

Life is precious.

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