10 bottles of juice on the wall, 10 bottles of juice…

I think McCanless and I will be singing this song in our sleep tonight. (McCanless can’t really count backwards from 100, so we had to improvise with the numbers as well as the um, beverage)

The girls team hit the road today for a clinic visit in Charleston. Yes, I’m crazy. I took both girls today, alone. It actually worked well. I’ve gotten good at timing these visits, so I know exactly when and how long Mary Clare will sleep. (almost to the exit) I thought it was going to be a long day when, about an hour outside of Hartsville, McCanless said, “I change my mind Mommy, I would rather go to school.” When I explained that we were way too far away from school, I had to find something to occupy our time. (A movie in the DVD player had already resulted in car sickness. Apparently my mind is going…I should have remembered this about her.) So it was 10 Bottles of Juice on the Wall for about 1 hour and 10 minutes.

Mary Clare’s visit went very well. In fact, we are cleared for visits to be every 3 months now!! Her oxygen levels were in the mid 80’s, which is higher than they have been in a while. Her BP and heart rate were great, and she now weighs 15 lbs 6 oz!!! She had her last RSV vaccine and blood draw today too!! McCanless had fun explaining Mary Clare’s scar to the cardiologist, as if he didn’t know why it was there. She told him that Mary Clare had a broken heart and that it was her job to rub medicine on it every night. (lotion) She was quite the little helper today…for all of us…me, the nurses, the cardiologists, other parents, etc. She really did great considering we arrived at MUSC at 10:30 this morning and didn’t get back into the car until 2!

We were also able to visit a friend of ours for a few moments while there. Little Bella was born a few days before Mary Clare and our families really got to know each other this summer, as we were “dorm mates” in the PCICU and 7C for a while. Little Bella is back at MUSC for a few procedures and was doing well when I spoke to her mom today. They are such a wonderful family and little Bella is so sweet.

I also spoke to Erica today as she and her husband were preparing to leave for MUSC for Emerson’s heart cath tomorrow. Please keep both of these wonderful families in your thoughts and prayers this week. These precious babies are so sweet and we hope and pray for both of them to be home and well very soon.

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