Update on Mary Clare’s heart friends…

If you remember, in previous posts I wrote about adorable baby girl with HLHS from Hartsville. We met sweet Kierra and her mom, Shirley, at MUSC in October when Mary Clare had her heart catherization, and got to know them better as they were still on 7C in December when Mary Clare had her second surgery. As rare as Hypoplastic is, it was shocking to know another baby with the defect so close to us. I’m sad to say that baby Kierra passed away this Saturday at only 5 months old. Baby Kierra’s heart didn’t do well after her first surgery and was on a heart transplant waiting list, and sadly never had a chance with a new heart.

I pray that Shirley finds peace, as I cannot imagine what it is like to lose a child. Fortunately, Shirley was able to bring her baby girl home for a few months and spend time with her away from the machines, doctors and MUSC life.

I am again reminded at how blessed we are to have our strong baby girl and pray that God continues to allow us to care for her. She is a true miracle that we are so very thankful for.

Baby Emerson is at MUSC right now for her pre-op day, and will have her second surgery, the Glenn tomorrow. I spoke to Erica last night and they are all very nervous, as one would expect. Please keep her in your thoughts and prayers. If you are interested in keeping updated on baby Emerson (as I often have several of you ask about her) please visit her care page. Go to www.carepages.com, log in, and go to her page: EmersonBanksMay

It is amazing what these babies endure. What little fighters and what amazing testimonies to God’s grace.

5 Comments

Lee  on March 4th, 2008

Kierra’s family is certainly in my prayers. Hope Emerson has a great day tomorrow. We’ll be praying for her!

Kate  on March 5th, 2008

I will be praying for baby Kierra’s family. I can’t imagine what Shirley is going through. We are all very lucky to have been able to hear about and know of such a wonderful baby girl. She will surely be missed and remembered always. God Bless..

Terri Woodham  on March 6th, 2008

My heart breaks for Kierra’s family. These precious “heart” babies are such little fighters.
I guess God only knows when their littles bodies are too tired to fight any longer and He takes them home to be in His arms.
These babies have really enriched my life. If little Kierra only knew what an impact she made on so many people.

George  on March 9th, 2008

They will be in my prayers everyday.

Brandi  on March 9th, 2008

You guys really have been blessed to have made it through all Mary Clare’s surgeries and procedures so smoothly. It seems like HLHS is much more common than it used to be. Here is a link of a friend of a friend who’s daughter has it as well and is really struggling. Maybe you have some advice for her….Anxiously awaiting more blog..Brandi
http://juliannesjourney.blogspot.com/