Neurology 101
I just realized I never posted an update on our most recent MUSC venture… We packed up and headed to our beloved Charleston once again last week for a visit with Mary Clare’s neurologist Dr. Turner. We adore him. MC adores him. If we have to have a neurologist, he is certainly our man. Very Steve Carell-ish. In fact, he has a photo of Steve Carell on his iphone and a little iphone trick in which Steve Carell seemingly calls him.
Nothing new. MC has seizures. She will most likely have another. Her little brain is just made that way. The lesion on her right frontal lobe may be the culprit but it will never be certain. Her seizures have nothing to do with her heart and vice versa. Not only does she have HLHS, she has HLHS and seizures, which Dr. Turner says he, “never sees.” Such a unique little girl we have!
We have decided to wait on giving her daily oral meds. If/when she has another seizure, Dr. Turner strongly urged us to begin meds. We just feel like she will have so much going on in a couple of weeks, we didn’t want to mix in another medication and potential side effects. So far, so good. No seizures. I even allowed her to go to the beach for the night with my mom. (I nearly had a panic attack at one point as they were traveling down and I lost contact-thanks to my mother’s uncanny ability at keeping her phone dead at most times.)
Mom took the girls to the beach. They danced in the Atalaya Castle in Murrells Inlet and watched princess movies. No seizures for her. Only one panic attack for me. Life is good.
2 Comments
Terri Woodham on February 23rd, 2011
I was on pins and needles when I found out my phone wasn’t working, but I didn’t want you to know. I knew where and what to do this time. Cannie even helped me with the lookout-at one point while MC was sleeping, Cannie assured me she was still breathing! I still know what to do in case of an emergency! I had you, Kace, Kate and Alston with many stitches, broken bones,and pneumonia.
By the way, Verizon is sending me a NEW phone! It wasn’t my fault all the time! Yeah!! More pictures on FACEBOOK.
Clemson Julia on February 21st, 2011
We saw your mom yesterday and she told us about the trip to the beach and how she put the girls to sleep on the way home with Elvis! ha
Thinking of MC all the time and praying for her March surgery to go as smoothly as possible!!