I just received a call from Dr. Bradley’s office.  Two precious heart babies need his care at the moment more so than my Mary Clare.  After much deliberation they have decided to postpone her surgery.  New Fontan date is March 30.

I’m terribly disappointed as we were mentally ready for this to be behind us, however, my heart aches for these two new heart families and knowing the road they face.

4 Comments

jane coulter  on March 7th, 2011

Kerri-
I am sorry for the reschedule, but I know you can certainly understand. It must be very hard to be prepared and then have to wait a little longer. Hang in there. I continue to pray for Mary Clare and your whole family. We met with Dr Bradley a couple weeks ago and decided on MUSC for our baby boy’s care. Thank you for your help with my questions about all of this. Take care.
Warmly,
Jane
(Charlotte-pregnant with twins, boy with HLHS)

Jennifer - HLHS mommy to Colin  on March 7th, 2011

I know how hard it is mentally to be bumped, we were bumped for Colin’s Glenn. You prepare so much mentally, then BAM.
BUT so glad she is doing well enough to be bumped. Praying for the families who had to take her spot and hope they pull through.

Terri Woodham  on March 8th, 2011

I, too, am saddened and disappointed for you and Mel, but there is a reason. I only wish you were with the two families with these sweet innocent babies to give them the support and encouragement they will need.
In the next three weeks we will prepare again-but until then, we will rally around “Ariel” (MC) and McCanless-doing what we know best-having fun and loving the time we have with each other.

Kate  on March 9th, 2011

I hate to say this but I forgot that Mary Clare is not the only sweet, loving, and beautiful baby girl with HLHS… When I heard about the two babies that were being born and needed care sooner than MC – my heart sank. I felt horrible for forgeting all the others who too have loved ones who need the wonderful doctors at MUSC.. I pray for those babies and all those who are worried sick about them.. We all know the feeling, too well…
I love Mary Clare and I’m so ready for this to be behind her.. I want her to go to Disney World, dress up in costumes, yell at her sister, run in the back yard and eat as much ice cream and candy as she wants… AND also – a much needed vacation to Florida where Ariel can swim in the salt water pool and learn to swim, like her big sister did!!!
I know this has been a rough day – it was supposed to be the “big” day for a little MC.. Just know and remember that God is with you and loves Mary Clare more than anything in this world too.. His plans wouldn’t have changed if it wasn’t needed…
I love you, Kerri!! You are an amazing person! You have done a wonderful job – just look at your girls.. I love you all!!!