Fontan Day 11: Pink, I said. Pink! Pink! Pink!

2:00 We have quite a busy girl these days!  She’s napping from a great morning of costume changes, lunch outside and lots of Pinkalicious surprises!  Mel came back into town last night after a couple of days “catching up” at home.  He visited with McCanless one last time on his way out of town and we all “Face Talked” on our phones.  (We could see each other via my iPhone and Mel’s Iphone)  It was so great to see her and let her see that her baby sister is doing so well.  Mary Clare’s chest tubes are draining quite nicely and her trend continues to be on a steady downward slope!  Yay!  Her cardiologist is convinced that we’ll have one more day of an increase in fluids, but so far, she’s proving him wrong!!  She gets stronger everyday and seems to be feeling much better.  Last night, we visited the Atrium and she painted her hands and arms blue.  I’m beginning to see more and more of my “old” MC shining through!

We had several visitors yesterday.  Ms. Reagan brought pink cupcakes, pink icing and pink sprinkles and we had a cupcake decorating party.  Sprinkles were everywhere.  Aunt Kacy, Aunt Liz and Uncle Robert entertained us too!  Normalcy is setting in, finally!  Unfortunately, exhaustion is too.

Mel brought with him a car full of pink goodies and pink treats from friends and family, including a Pinkalicious cake!

Sylvia’s Cakes in Lancaster sent MC a Perfectly Pink Pinkalicious cake and cupcakes!  So yummy!

Lunch at Halo across from the hospital.  Collection chamber boxes are in the back of the stroller.

Watching “Annie” on the Ipad.  Thanks Aunt Liz and Uncle RahRah!

Tuckered out in her beautiful “Annabelle Bow” after our morning out!

We were finally able to wash MC’s hair tonight!  (She’s had sticky EEG hair for almost a week now.)  I held her back in her bed and he used cups of water over a basin.  It was tough trying to support her without hurting her back or chest or get tangled up in all of her wires, lines, tubes, and big fluid boxes, but we did it!  She thoroughly enjoyed it and closed her eyes as we scrubbed it and poured warm water over her blonde locks.

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