Update on Miss MC

Mel, Mary Clare and I are at the beach while McCanless lives it up at camp. (I wouldn’t dare tell her we went to the beach without her. She would be furious! I’ve been writing her at camp and telling her how bored we are, which is far from the truth.) Mel has his annual SC Funeral Director’s Convention this week and it’s usually something we all look forward to. Several days at the beach at the Grand Dunes with Daddy is always a treat. I almost skipped this trip because we’ve been so busy. (At MUSC last week, New Bern for camp this weekend, etc.) But after Mary Clare had a seizure in New Bern, I decided I wanted to tag along with Mel just in case. (I just had a feeling Mary Clare was a little “off” this week and I didn’t feel comfortable alone.) I’m so glad I did. She had a seizure last night on the way down in the car and another tonight at dinner.

I know I’ll never get used to seeing her seize. It is something so unnatural and certainly not how you want to see your baby. Mary Clare seizures aren’t as violent as they have been in the past, but they are longer. She usually comes out of it after a few minutes or so and we’ve only had to use her Diastat (emergency meds) a few times. It’s amazing how differently we react now after she’s had dozens of grand mal seizures. Tonight, we were with a few other couples and as I noticed her slip into a seizure, I patted Mel’s leg to let him know and I gathered Mary Clare up into my lap. She was on the end of the table and I had her facing away. Only the couple across from us noticed. After the eternal few minutes when she was slowly coming back to us, she grew upset and angry. For about 20 minutes, she was very sensitive to lights, sounds and smells. In fact, when a huge lobster came to our table, she asked them to take it away, it was yucky. I took her outside to recuperate and Mel called Dr. Turner to touch base. By the time we joined our table, she was playing and singing, had taken off her sandals and was dancing around the restaurant barefoot.

We have a plan with Dr. Turner and trust him completely. I’ve heard from more than one Epilepsy mom that finding the right anti-seizure meds/combination/dosage is the most frustrating part of it all. I hate to wish away time, but I will certainly be happy when all of her seizure activity settles down a bit. She’s one tough cookie and has beaten odds before. I’m sure this is just one little bump in the road for our feisty little sweetheart!

2 Comments