What do you think?

This morning around 10ish I received a call from Dr. Brooks, the geneticist on the “boob board,” with my BRCA 1/BRCA 2 genetic testing.  (Remember, this is the genetic study that checked “me” not “my tumor.”  Drum roll please……Genetically, I’m gold.  (Well, in the area of breast and/or ovarian cancer anyway.)  This means I’m not predisposed to “grow” tumors.  I do NOT have the BRCA1/BRCA 2 mutation!  Yay, I thought.  However, my geneticist reminded me of what I realized last week.  This is good news for Mary Clare and McCanless.  (I can’t pass along a faulty gene if I don’t have it.)  But, it leaves the unanswered question:  Why?  Why in the world does a healthy 34 year old, with no family history or crazy mutated gene have breast cancer?   I think this is what kills these doctors, oncologists, geneticists, surgeons.  They can’t explain it.  There is no reason.  I just have it.

I swear I’m buying a lottery ticket tomorrow.

Then around 2:00, Dr. Sweatman called. (On his vacation week, I might add, yet still called me, himself.)  I so love this man.  Rephrase, I have so grown to love this man.  He said my Oncotype DX results were in.  (Remember, this is the study of the biological activity of my actual tumor.  The tumor was given a score between 0 and 100 that correlates with the likelihood of a my chances of having my cancer return, and the likelihood that I will benefit from adding chemo to the treatment plan.)

I was sitting on the bench under the front breezeway at THA, my second home, watching parents eagerly walk in to gather their babies or stop by the office to chat with congregating mama hens.  Where I’ve taught, worked, loved for as long as I’ve been married.  Students watched me learn to be a better teacher, grow huge with the pregnancies of my own two baby girls.  The place where I remember parading through the high school halls in a huge homemade Jack-O-lantern costume on Halloween as a third grader, loving art class because I sat beside my best friend, Cyndi Hill, as a new kindergartener.  The school that simply adores Mary Clare and gathered to pray all decked out in pink on March 30, 2011.  So many memories in this little school.

You know how you just know?  The sound of someone’s voice is such a tell-all.  I know I’m not the first person he’s had to give these type of results to before.  I may be the one millionth for all I know.  But, I think it’s just human insight to know.  To feel it.  We can all read between the lines, between the words.  As he began to tell me what I feared most, my mind wasn’t on the specifics of numbers, oncologist information or well-wishes, it was in a state of shock.  I think it took my brain a few minutes to digest it all.  Did I really hear that?  Maybe I’m misunderstanding.

Dr. Sweatman was honest, straightforward and very reassuring.  He explained that my Oncotype DX results were not low (no benefits of having chemo) nor were they in the high range (straight to chemo).  I’m in the intermediate range, but given all of my results, thorough information and questionable onset, Dr. S feels chemo will be what is best.  Since chemotherapy it is, surgery will be postponed until after chemotherapy.  It’s likely that chemo will shrink the tumor making surgery less invasive.  Fingers crossed.  He referred me to Dr. Butler in Columbia with SC Oncology Associates, who is also on the boob board. Dr. Sweatman “warned me” that Dr. Butler isn’t a “warm and fuzzy” doctor.  He’s very honest and straightforward in his approach.  “Now, don’t be alarmed,” which was all hysterical coming from Dr. S, when so many others “warned” me the same about him.  It was nice little jewel, this inside joke.  It made me laugh when I so wanted to cry.

Originally, he scheduled a surgery date of September 7.  I didn’t “pen-in” this date because I knew it could change.  It was a tentative date of a lumpectomy.  I would have had my lumpectomy followed by radiation treatment.  That would have been the best case scenario.  But, just like I always tell Mary Clare, “you can’t always get what you want.”  So, September 7 surgery date has been swiped.

Mel and I will head to our favorite capital city tomorrow morning to meet the man who will juice me up with a cancer cocktail plan.  I have the utmost respect for Dr. Sweatman and I just feel that what he is doing is exactly what I need.  He said Dr. Butler is the best, so I’m going with that, non-fuzzy and all. Hopefully, we’ll have Chemo 101, get a time frame and schedule and possibly a ball park idea of a new surgery date.

Not what I was hoping, but after a quick and very therapeutic three minute cry with a few friends at THA, (Dr. S called just as I was heading into carpool) and a few laughs about a pink wig and sign-up sheet for those who wanted to drive me to treatments, I realize God has given me all I need to get through this:  lots of laughter and tons of love.

At 3:00,  I made another realization.  I had four giggly girls staring at me who needed to get changed and rushed through homework so I could haul them to dance by 4:00!  Dance, Mexican, Wal-Mart run (sans girls-once Mel came home from a late meeting) and I’m home.  Life as usual carries on.  This will not keep me down.  I’ve had my three minute cry and I’m done.

Tonight, I’m bracing myself for my non- fuzzy oncologist, Dr. Butler.

I’m ready.

11 Comments

katie  on August 29th, 2011

Kerri-
First off, wow. You’ve sure had to wrap your brain around a lot in such a short amount of time. Though, I’m not surprised by your awesome attitude…you are handling all of this so incredibly well. I love that you’re accepting it as it comes but still living life as normal as you can. Thank God for being a busy mom, right!?! I love the pink wig and I’m thinking that a certain someone in your household would think you’re pretty darn cool too. You may have to buy 2 so she could wear one as well! Hang in there–know that I think of you often and I’m sending prayers and good wishes your way. Thanks for updating so we can pray accordingly. Love you friend!

mimi and bapa  on August 30th, 2011

Hair has nothing to do with what makes you so wonderful. (look at Bapa!) Your beauty starts on the inside and we love you for that!

Judy Brown  on August 30th, 2011

Please add me to the list of people to drive you to Cola. Unfortunately for friends and family members, I have had experience doing that. It would thrill me to actually DO something for you.
If there is any other need you have, count me in!
Still praying.

Rebecca butcher  on August 30th, 2011

I would love nothing more than to meet you here and hold your hand through it all. I know this isn’t what you wanted but none of it is. You will win! You continue to amaze me…love you so much and so thankful for your girls that keep you hopping. Love and prayers for you today as you take another big step…

chaarlow  on August 30th, 2011

I second that Mimi and Moe!! Just hold on to those around you, they will carry you through this. So will He! We will be praying for you girl! Love you all! (You and Mary Clare can be Pinkalicious Princesses for Halloween this year!)

Cathy Flowers (Hill)  on August 30th, 2011

It made me laugh to read the part about Cyndi… I can remember you both being buddies…
FYI- My Dad- Calvin Hill works at SCOA- that is where he got chemo…. THEY ARE WONDERFUL PEOPLE… He works on Mondays in the AM until around 2 every week( the ladies are in love with him- such a flirt:). They have made him better and I OWE the world to those nurses and dr…. I laughed at the part about Dr.Sweatmen- I thought he could be a butt when I worked with him- family friend or not. I am so glad you like him and he is dern good at what he does. I know you did not get the news you wanted- so sorry for that- but you have a great team behind you!!!

Nancy Money  on August 30th, 2011

We unfortunately (or in our opinion – fortunately) have had lots of dealing with Dr. Butler. He is a WONDERFUL doctor and is the best. I hope your opinion of him will be the same. Know that you are glad the waiting is over even if the report was not perhaps the one you were wanting to hear. You are an amazing young woman and have such a great support group of family and friend to see you though this journey.

NClavin  on August 30th, 2011

Dear Kerri,
We dont know each other but i have been following your blog for a few months. I just fell in love with your family and keep you in my prayers.I have CHD not complex but I have had my ups and downs.I am also an oncology nurse so please feel free to contact me. I will keep you in my prayers and thoughts. Stay strong!
Nancy

Angela  on August 30th, 2011

Hi there,
Me again 🙂 I just had my last chemo treatment yesterday, under Dr. Butler’s care. I would be very happy to give you any insight I can.

Chemo is not NEARLY as bad as you anticipate it, especially when you have a wonderful support system. It is true that things have come long way since it used to be so horrible.

Your chemo nurses will be Dusty and Ann, who you will absolutely ADORE!!! They’re fantastic, smart, and funny.

You will march through this and be a stronger person than you already are!

🙂 Best wishes with warm fuzzy Dr. Butler….ask questions, because otherwise, it will be a 5 sentence meeting. 🙂

—Angela McCall, luckyduckhitsspeedbump.blogspot.com

Angela  on August 30th, 2011

I just realized you must have had your appointment yesterday. I was at SCOA yesterday!

Anyway, I’m here if you need anything,
[email protected]

KATE  on August 31st, 2011

you just amaze me more and more each day.